Alopecia, or hair loss, has many underlying causes and affects millions of people in the U.S. and around the world. Dermatologists have the right medical training to treat the myriad types of hair loss, but the field, and the medical community at large, have failed to address the specific needs of Black and African people. For Black people, hair loss is more than just a medical condition — it’s a deeply personal and cultural issue.
Black and African people are underrepresented in dermatological research, especially in alopecia studies. This research gap creates a lack of understanding of the condition among doctors and the lack of cultural connection or knowledge needed to diagnose and treat Black and African patients.
To better understand the experience of Black people with alopecia, I conducted surveys asking people their opinions around hair and interviewed 10 people about their experiences with hair loss. The study, part of an undergraduate research project, was small but informative. The surveys showed — to no surprise — the value of hair to Black identities. The interviews revealed that common reasons for hair loss were hair straightening, the use of tight hairstyles, and damaging hair products.
Among the interviewees, only one person had visited a dermatologist, and one other had gone to their primary care doctor for hair loss. The rest of the interviewees said they had sought advice from social media, barbers, family, friends, hairstylists, and braiders. I asked the participants why they did not seek medical or dermatological advice, and some they said that they believed that dermatologists did not understand the unique needs of Black or Afro-textured hair.
Half of the study participants specifically stated that they preferred to seek out advice from a person who looks like them and who also understands the cultural nuances surrounding hair. For medical providers to better serve Black and African patients, dermatologists and health care providers need better representation and to establish a cultural connection with the community.
To shift the blame away from Black hair practices and traditions, it is paramount to include more people of African and Black descent into research studies.
They can do so by learning about the historical and cultural significance of pre-colonial African societies, where hair signified more than aesthetics. In pre-colonial Zulu, Xhosa, Akan, Masai, and Yoruba societies, hair could signify religious spirituality, social status, or community belonging. During colonialism and enslavement, the imposition of White Eurocentric beauty standards encouraged Black and African women not to express their natural hair. As a result, in the 1900s, more Black and African women relaxed and straightened their hair — a practice that comes with a price. Besides causing chemical damage to hair and potentially harming personal health, straightening leads to loss of connection to Black and African culture. Hair signifies a heritage that has thrived in the face of subjugation and racial violence for centuries.
This cultural knowledge is essential when discussing alopecia. Traction alopecia is a common form of hair loss among women of African descent caused by tight braids, such as cornrows and dreadlocks. But focusing on these causes without acknowledging the cultural significance of such hairstyles fails to address the needs of the Black community. It also places the blame on Black and African people for their hairstyles or cultural practices. This creates an unintentional opposition to Afro-textured hairstyles, with dermatologists often advising patients who have traction alopecia to stop wearing hairstyles that represent parts of their own Black identity.
The experience around hair loss falls into a pattern of blaming Black people for their own health problems. Scientists have blamed obesity and body mass index (another racialized term that should be abandoned) among African Americans on their eating habits. Instead of castigating and accusing certain hairstyles or cultural practices for causing hair loss, the medical establishment should ask itself about the system of enslavement, colonialism, and White Eurocentric beauty standards that erased much of the native tools, oils, and Afro-textured hair practices over generations. I wonder how prevalent alopecia was before colonization of the African continent.
To shift the blame away from Black hair practices and traditions, it is paramount to include more people of African and Black descent into research studies. Allowing Black and African identities and culture to be integrated into research design builds trust between the Black and African diaspora and the medical community.
One way of building trust is through community-based participatory research, which acts to directly involve members of a respective community to provide input in all aspects of the research methodology and execution. This approach empowers communities by providing a voice to the marginalized and constructs a long-term public health and community network and research apparatus.
We can use this not just to uplift voices in dermatology but in medicine overall by centering the participants, not the researchers.
Spencer Kwabena Annor-Ampofo is a senior at Washington University in St. Louis who is studying African American studies with a minor in biology and plans to pursue an M.D. and Ph.D.