The author seems to want to blame white people for the under representation of black and native Americans. Many of these groups self select away from genetic testing and this is not based on the models used in the recruitment videos. In addition to concerns related to criminality, some groups are concerned that genomic mapping will destroy their cultural myths. The more extensive genomic mapping becomes, the more we are going to realize we are all a closely interbred bunch of mutts.
Brian, consider the Tuskegee Syphilis Experiment and other awful health experiments performed on Black people such as the Henrietta Lacks incident and then see if you still believe that a lack of participation in diverse communities is really due to “cultural myths.” Your claims lack empirical evidence. I do agree that we will all eventually find out that we share common genetic bonds, but your comparison of people of multiracial descent to “mutts” demonstrates a clear lack of understanding. Soon you, and many others, will be shocked to find that these “mutts” will make up the majority of the world’s population.
In my experience as a woman of color, we are affected by different diseases. Diseases that affect both white and non-white populations typically affect populations of color differently. The examples that come to mind are Sarcoidosis and Fibroids.
I am participating in 23andMe’s Health & Ancestry service but very few of the Health Markers apply to someone of my genetic background/makeup. Even when it comes to physical traits, the genes that are thought to affect attributes such as a widows peak, chin dimples, finger and toe length, I found to be accurate less than 50% of the time. (Although I was happy to be given a hall pass for being tone deaf.) Why would anyone pay for a service that doesn’t provide any clear benefit?
The premise is, we provide our DNA, the company provides insights that we can use to live a better life or a solution that has negatively affected or plagued the population. If they can’t provide valuable insights or a solution to a known problem, then why would anyone participate?
Scientists have historically not focused on diseases that affect minority populations because Big Pharma doesn’t think they can make money on those solutions. Therefore non-white or minority populations will not donate their DNA because there is no fair exchange or positive cost benefit between the parties involved.
This is undoubtedly a good piece of article which would stimulate further research in the field. Simultaneously this artcle emphasizes about inequality in providing health services which will be important to the policymakers. However, the article fails to provide the basic information about hypertrophic cardiomyopathy which would be significant to the readers.
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