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My husband is suffering from optic nerve atrophy in both the eyes. Do you also do stem cells for the eyes. Please reply.
I am a 51 year old female that just found out I have Motor Neuron Disease Parkinson’s about a year and half, but I have been having signs of it for years, tremors, depression, body weakness. ECT. I honestly don’t think my doctor was reading the signs because of my gender and age. A few years ago I had my shoulder lock up on me and I was sent to a P.T since x-rays didn’t show any physical damage. My shaking was getting worse and I began falling. Only when my speech became so bad that it brought concern to my dentist was Parkinson’s even considered. He phoned my doctor with his concerns about my shaking and balance problems. By this time I was forgoing shots in the back of my neck for back and neck pain to which once again I was sent to a P.T (although x-rays showed no damage) I was told I had a few spurs which were most likely causing the pain. Here I was feeling like my whole body was falling apart and doctor could not find anything wrong, maybe in was all in my head? My doctor even seemed annoyed with me and things just kept progressing and I just kept it to myself, why bother going through testing and them finding nothing? Well, it was after my second P.T called my doctor about the weakness in my legs and arms, by this time I have developed a gait in my walk and I fell more frequently. Only then did my doctor send me to a specialist and it was found that I had Parkinson’s, and that I have had it for awhile. I think because I was a woman that my signs and symptoms weren’t taken seriously and therefor left untreated for so long,I was taking pramipexole dihydrochloride three times daily, I Was on carbidopa levodopa but only lasted 90 minutes then wore off.I found that none of the current medications worked effective for me.I got tired of using those medication so I decided to apply natural herbs formula that was prescribed to me by my second P.T, i purchase the herbal formula from totalcureherbsfoundation. com, There has been huge progression ever since I start the treatment plan which will last for 15 weeks usage.all the symptoms and sign has begin to disappear .
To Amos Zeeberg,
Thanks for a great article giving the proper scientific balance to the opposing views.
We dont see this often enough.
There is no substitute for trials that randomly allocate patients to treatment and placebo groups with neither the patients nor those conducting the trial being aware who is in which group.
Thanks for stating this point so clearly.
Ant deviation simply results in time money and effort wasted on treatments that almost certainly do not work and almost certainly have unknown side effects. A large majority of treatments that go through RCTs are either shown to be useless and/or have unacceptable side-effects. There is no reason this would not be true for treatments that never go through this process.
Do you think that the stem cells could help healing from the rare genetic disease HIBM? Is there any chance?
I have the adipose stem cells treatment and my knees and my knees pain are from 8 to 1. If it is due placebos effect, then I am happy about that.
Hello I’m Bharat from India. I have brain stroke right side paralysis.
My son: Silvan Prayogo is Biotech Scientist.
Under Grad in Mol Bio and Bio Chem of Colorado State Univ. Fort Collins/USA (2003) and MASTER in mammalian Cells Culture from Univ.of New South Wales Australia (2005)
This moment/since 5 YEARS ago live in TOKYO.
He could speak Japanese.
This moment he work in Berlitz Company as Private English Teacher.
He is still looking work in Biotech’s field (improve knowledge and business) , and possibly as volunteer.
He is interested study /learn about IPS Cells , but not yet get the opportunity.
I am very happy supposed Company / University in Japan/ Tokyo could help him using his knowledge to work for humanity (non profit work etc) to avoid his effort study in Biotech field become useless……….
Let me know or contact his email:……firstname.lastname@example.org………/my email:…email@example.com……
Dr Harry Prayogo
Contact your state and federal representatives via phone, email and social media immediately. Tell them you want stem cell therapy available and covered by Medicare NOW. Contact the FDA and do the same. We cannot wait to be healed. Keep contacting them until you get a response. Tell everyone you know to do the same. Be relentless. Change can happen sooner than you think.
“Ever since Friedman questioned the need for the FDA in the 1970s, the agency has faced a rising drumbeat of calls to get out of the way. This reached a crescendo in the 1980s, when patients were desperate for any treatment that could slow the progression of AIDS. After sharp and public criticism, the FDA created Parallel Track, a scheme that let patients with AIDS take experimental drugs, and launched a similar program called Expanded Access — often referred to as compassionate use — for other terminal diseases.”
In fact, FDA has allowed access to unapproved drugs, outside of clinical trials for the purpose of treatment of cancer and cardiac disease since the 1970s – prior to the AIDS epidemic. “Expanded access” was codified in FDA’s regulations in 1987 to treat patients with serious or life-threatening diseases (including HIV/AIDS), who had exhausted or were intolerant of approved therapies – if companies were able and willing to provide the investigational therapeutic product.
Parallel Track followed, in 1992, and was a policy (not a regulation) – restricted solely to use in AIDS – and was never codified into regulation. It was used only once, for d4T (stavudine).
Accelerated Approval, which is essentially a tentative approval based on surrogate markers likely to predict a clinical benefit was also initiated in 1992, and has been very successful at getting important therapies to market earlier – while drug developers are required to conduct continuing trials to show that the treatment really does have a meaningful clinical outcome for patients. Accelerated Approval contains a component that permits rapid removal from the market of drugs ultimately not shown to be clinically effective.
Free-market libertarians are increasing pressure, and using vulnerable patients as levers to loosen regulatory requirements. As FDA is pushed to further loosen requirements to show safety and effectiveness, the US could become a nation where social media bots will guide people to expensive treatments that don’t work, and to believe it’s their right to access unproven, and sometimes meaningless therapies.
Many patients and families would much rather believe that an unproven therapy will work than face the reality that there are no viable medical options left to them.
Unscrupulous charlatans, rather than patients, are the ones that will reap the benefits from the kind of drug development scenarios described in this article.
Please I require more information about stem cell treatment. Because my husband has a spinal code injury. And his age is too small 37 years.
Try Stem Cell Institute, Dr. Meser in Costa Rica. He has a lot of good testimonials, and two have had spinal cord injuries. I have CIDP, and will be trying it myself next week. What do we have to lose when there is no cure otherwise?
I’m very sorry to hear about your husband. The treatment mentioned in the article is only available in Japan. I can’t give medical advice and wouldn’t comment about specific treatments, but I can tell you that in general, treatments that are tested rigorously through randomized controlled clinical trials (RCTs) are much more likely to work than ones that haven’t been tested that way.
People who sell stem cell treatments at clinics may have the best of intentions, but they usually don’t have good evidence that those treatments work.
Regarding the FDA? Big Pharma and big politics? They work in unison, and not with complete transparency, integrity, nor for the good of mankind -but, self preservation and profit before people.
Spent my lifetime in healthcare, 11 years in the pharmaceutical industry, BS was a premedical curriculum…Just to mention a few of my qualifications to comment.
Thanks for the comment. There are certainly flaws in the US pharma system, but there’s a lot of good that comes out of it, too, and many people working hard to help the ill—such as you, it sounds like.
Money-making scam for charlatans and quacks. Bogus trial to fast-track so they can hook more victims. Stem cell therapy is only approved for blood cancers, nothing else. Seems the majority of these scammers just happen to be chiropractors.
please let this be what I’m praying for. I know American spinal cord research is useless because they only focus on making money but this country is very advanced and intelligent.
I’ve been a nurse’s aide for 32 years. And I believe that stem cell therapy is the wave of the future. Saying that I’m begging to be put on any research trial anyways I want any kind of way I want to receive the stem cells please help me my body does not make enough bone marrow so my bones are deteriorating at a rapid pace any help would be greatly appreciated why does it always have to be about money can’t you doctors help just one person just one let it be me I have five children three grands and I know that if I get the stem cell therapy I might have a chance to be able to walk and live a normal life please help me.
I hope something does come through to help you have a satisfying life, Donna. I don’t know if there are any treatments yet for your condition, but there are promising stem cell treatments being tested for some illnesses and a lot of doctors working hard to help cure people.
When will it be available for the public use